Thank you for your interest in this study about metastatic breast cancer. The purpose of this research is to understand experiences, impacts on Quality of Life (QoL) and needs of people diagnosed and living with metastatic breast cancer (mBC). We will be asking you some questions to see if you are eligible to participate.

Individuals who meet the eligibility criteria may be asked to take part in a survey with an online self-completed questionnaire that will last approximately 20 minutes.

This study is being conducted by IQVIA on behalf of a pharmaceutical manufacturer, and the study complies with applicable data privacy laws and regulations in relation to this survey.



Any information you provide to us as part of the eligibility questions will be treated as confidential. It will be combined with feedback from others like yourself and will be stored in an access-controlled file. Your information will be kept secure at all times. Personal identifying information such us names and detailed information about locations are not collected in this survey. Any personally identifying information you give to us as part of the survey will be destroyed 24 months after study completion.

If you are eligible to take part in the study, you will be provided with additional information, which explains how the study works and your rights as a study participant.



 

Click 
here 
to read the full terms and conditions of participation in the study 

Data Privacy Notice

Purpose of Personal Data Processing
For the purposes of this form, “personal data” means any data relating to you, such as responses provided in the course of participating in the Study.

Study Sponsor will serve as Data Controller and IQVIA will serve as Data Processor of personal data processed in the terms of applicable legislation, and processing of such personal data will relate to conducting the Study and any follow-up contact that you have consented to.

Your responses will be processed by the IQVIA group of companies (“IQVIA”) on a strictly need-to-know basis, for purposes determined by the Study Sponsor of understanding your experience with metastatic breast cancer. Your responses will only be processed in a de-identified and aggregate way by IQVIA.

How we store your information and your rights
Your data is retained only for the period that is necessary for the purposes for which your personal data is collected. Your responses in the Study will be maintained for 24 months except to the extent required to comply with a legal obligation.

You also have the right to complain to a data protection authority in the country where you live, work, or where you believe data protection laws have been breached.

Adverse events reporting

We are required to pass onto the sponsoring company details of any adverse events, special situations or product quality complaints that you mention in relation to any of their products, even if it has already been reported directly to the sponsor or regulatory authorities. The information you provide may be disclosed to local and overseas regulatory authorities, or other third parties for the purposes of meeting pharmacovigilance requirements. Should you report an adverse event, special situation or product quality complaint, the sponsoring company’s Drug Safety department may recontact you to seek further information about this, but only if you give permission below.

Confidentiality Agreement

You acknowledge that in the course of the Study, proprietary information regarding products and product development, and other trade secrets and know-how may be disclosed, and by participating in the Study you agree to hold all such information confidential and to not disclose it to any third party or use it for any other purpose whatsoever. You also agree not to disclose any part of the following pages, which are proprietary material of IQVIA and the Study Sponsor.

You are required to accept all the Terms and Conditions stated above, concerning Data Privacy, Adverse event reporting, and Confidentiality Agreement, in order to participate in this survey. Further information about the processing of personal data by us is available in the IQVIA Privacy Policy available at https://www.iqvia.com/about-us/privacy/privacy-policy. Please indicate whether or not you accept our conditions and start now:

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Before passing on the main survey we will first ask some screener questions to ensure you can participate in this survey. 

Time (in ms) of loading Decipher after API call to Decipher - includes the time of fetching global texts

Time (in ms) of SCS and Decipher's API call to SCS. Includes all survey's calculations before the API call

Time (in ms) between the moment respondent clicks the link from SCS and can see the first page in Decipher